Genetic Testing Divides Families
Patients are faced with a complex process when deciding to disclose genetic test results to their family members, as reported in a study published in the Journal of Nursing Scholarship.
(PRWEB) May 12, 2005
Patients are faced with a complex process when deciding to disclose genetic test results to their family members, as reported in a study published in the Journal of Nursing Scholarship.
ÂIndividuals who have a family history of a particular disease such as breast cancer or HuntingtonÂs disease can now have a genetic test that will tell them if they, specifically, are at risk for that disease, states lead researcher Rebekah J. Hamilton, RN, PhD, of theUniversity of Iowa. Hamilton looked at the decision making process of 29 participants, what and how they chose to disclose to family members, as well as the effects of test results. Knowing present or potential risk for children and being able to make plans for the future were cited as additional benefits of testing.
ÂSome evidence from this study indicated that cliques form in families composed of those who test positive for a mutation, said Hamilton. Further research is needed to explore family dynamics over time after test results have been disclosed.
Researchers found that the type of disease, as well as the individuals perceived need to prepare, influenced the timing of disclosure to family members. Some were selective in the information they revealed as well as with whom they shared the information.
Hamilton reports that even when family members are in agreement about having testing, receiving a positive result can have significant consequences on family connections. The data could influence clinical practice regarding genetic testing and what or how to discuss findings with family members.
This study is published in the Journal of Nursing Scholarship. Media wishing to receive a PDF of the article please contact medicalnews@bos. blackwellpublishing. net.
Lead author Rebekah J. Hamilton, PhD, RN is a Post-doctoral Clinical Genetics Nursing Research Fellow at the College of Nursing, University of Iowa and will be an Assistant Professor at the University of Pittsburg in August 2005. Co-researchers include Barbara J. Bowers, RN, PhD, FAAN of the University of Wisconsin-Madison and the Australian Catholic University-National, Melbourne, Australia and Janet K. Williams, RN, PhD, FAAN, also of the University of Iowa. Rebekah Hamilton is available for questions and interviews and can be reached at rebekah-hamilton@uiowa. edu.
About the Journal of Nursing Scholarship
Blackwell Publishing publishes the Journal of Nursing Scholarship in partnership with the Honor Society of Nursing, Sigma Theta Tau International. This widely read and respected journal features peer-reviewed, thought-provoking articles representing research by some of the worldÂs leading nurse researchers. Reaching health professionals, faculty and students in 115 countries, the Journal of Nursing Scholarship is focused on health of people throughout the world. It is the official journal of Sigma Theta Tau International and it reflects the societyÂs dedication to providing the tools necessary to improve nursing care around the world.
About Blackwell Publishing
Blackwell Publishing is the worldÂs leading society publisher, partnering with more than 600 academic and professional societies. Blackwell publishes over 750 journals and 600 text and reference books annually, across a wide range of academic, medical, and professional subjects.
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